Leanne Barker shares Mam’s story of Day Hospice
“My mam felt that because her illness was palliative, she was just going to be left to die”
“Mam was 67 when she was diagnosed with pulmonary fibrosis after an exacerbation, which saw her hospitalised. She fought for her life and thankfully survived but the diagnosis and the little information on it left her so scared she shut off.
The Palliative Care Nurse referred her to the Day Hospice by Mam was very reluctant to go. She was struggling physically and mentally. We went for a visit and her first words were ‘you only come here to die.’ With the support of medical and no-medical staff mam was placed on medication that allowed her to re-do, although limited, some daily tasks and she started to interact with others.
She made many friends and realised that there was life after diagnosis. Wednesdays were the highlight of her week; chats, gorgeous home cooked meals and even head massages.
Mam came each week for about 8 months. It helped her believe that it is about living your life and making memories. With help she changed her mindset and we made some lovely memories in the last 8 months including with my son who is 10, and this is helping him now.
The Day Hospice made such an impact in not my my mam’s life, but our family’s life. Their holistic approach supported us all in many ways whilst we came to terms with her illness. Even after her death they still offer support. From Doctors, Nurses, Healthcare Assistants and Volunteers they put the care in caring.
The Hospice also provided her with counselling to come to terms with her diagnosis and support for my son for many weeks to accept the changes in his nana’s health.
Without the Day Hospice I honestly believe Mam would have sat and not left the house and in turn this would have impacted on her time left.
My mam died of something totally unrelated and sudden. We will forever thank the Hospice for giving her her confidence back and the 8 months, although short, that we had to make lots of lovely memories.”